Hi everyone! So today I turn 29, and my amazing husband gave me some alone time this morning to do whatever I wanted : ) It was much needed since the little man is running a fever and has been quite fussy, and we were also in a near accident yesterday (all ok) and I slammed my knee into the dash and am pretty uncomfortable...last evening Liam's temperature which I had hoped was just teething spiked up to 103. Part of me wanted to let it go, but I kept worrying what if he had pneumonia or a terrible ear infection.....could it wait until we got to a doctors office during the week? The pediatrician's automated message told me it would be 2-3 hours before the triage nurse called me back. So I called the allergy and asthma doctor hoping Dr. Ververelli was covering the weekend and could advise me... no such luck. Of course her associate told me with Liam's aspiration and high fever we go get checked out...that's what I expected. I want to just let my kid ride his fevers out like any other toddler, but there is always the what if game going on. Ultimately we decided to take him to children's to get checked out. Ears and chest xray were clear and we got Liam's fever down (YAY!). It was nice when the resident was absolutely amazed with how well Liam was doing, and then also told us, "you are doing everything right." It was exactly what I needed to hear in that moment....that moment sitting in the ER again asking myself how in the world we could manage to get this kid out of daycare full time.....or what other thing we could possibly do so he stops with this constant illness - he just finished another round of Biaxin May 24th and so soon again his allergies and asthma acted up now accompanied by a high fever. Liam being sick doesn't bother me - as a nurse I am fully aware that this is completely normal for any kid. Liam's illness affecting his development bothers me. He is doing so well going in the right direction, but how much progress can you really make with high fevers and terrible wheezing?......this just really makes me ponder... For now we are riding this fever out without antibiotics for a few more days and if it does not subside we will get into see the doctors this week. In the meantime we will continue doing everything normally. YES today is my birthday. We were SUPPOSED to go to a phils game and then a barbecue. Ok- the Phils game was not happening since my knee is banged up and Liam's asthma was terrible this am- but am I going to cancel a barbecue with my family and friends? NO. If we did this every time Liam got sick we would never leave the house. Liam was running a fever last year on my birthday as well... so while delirious last night we came up with a joke that I somehow transmit birthday viruses to Liam. LOL.
My biggest and most favorite birthday present EVER came to me on Wednesday morning this week. The county came to the house to complete Liam's annual evaluation. Of course my little munchkin was a hit with the ladies at the house, and he soaked up all the attention. His eval went great! Liam scored a 105 on the physical exam and his PT services are now discontinued. This is great to hear, since he has other therapies keeping us busy and it's nice for him to get a little bit of a break! Cognitively, I was told Liam scored one of the highest scores seen in awhile - 116. I am so proud of my little man, and there are so so so many woman who have been through what we have been through that would BEG to be told this about their rupture survivor. I am so proud of my munchkin! Liam's only minor deficit was in the area known as "self care." Basically, since Liam has recently started talking he hasn't gotten to the point where he initiates telling us what he wants. He doesn't tell us he is thirsty or hungry, he just throws tantrums until we offer it to him. With him making wonderful progress and having feeding therapy, it is only a matter of time until we get to this point, but until then we will have speech and feeding therapy to support us with our goals. In other news, Liam had a "milk scan" done this past week. This test is to check for any reflux or abnormalities with Liam's GI system. Liam wasn't feeling so well this particular morning and decided he did not want to drink his milk, so the test results are limited. What was seen was normal and absent of any reflux, but we may be told we need to repeat this test in the future. We follow up with Dr. Paul in early July.
For now folks that is ALL. I hope everyone is enjoying this gorgeous weather out there! Love to all, xoxo.
