Follow ups. Well, let's just say there were more than I could count. In the beginning, Liam was still on Phenobarbital which required blood work at times, I was still attempting to nurse, and Liam had some other routine tests done, this was all on top of the peds appts, neurology/EEG's, and NICU follow ups. I think I went back to see the lactation specialist maybe three times the first month. I begged and willed my body to do just ONE thing right..unfortunately in the end, it just wasn't the right decision for me and little man... Then we discovered he had a tough case of torticollis. If your not familiar, this is a condition newborns are sometimes diagnosed with where they have trouble moving their neck due to the cramped space they were in for 9 months! Usually it takes some physical therapy and it resolves...Thus began our weekly physical therapy meetings which have now become routine even after all issues have resolved, just to monitor Liam's progress. As time went on, things got easier in the sense that we got used to the chaos. Once I started back to work things got even more insane, and my husband and I communicated mostly through text and email, most of our discussions were who was taking Liam to what appointment, and who was able to take time off of work. Luckily, it all worked out. Liam's appointments all were going great! Liam's EEG results were normal at 3 months and he was taken off the seizure medication- this was HUGE for us, we celebrated! We are also so incredibly proud to say that he met most of his milestones AHEAD of time. Many times when Liam would see a doctor that wasn't familiar to him would be astounded by looking at him after reviewing his history, they could not believe how well he was doing = Our little warrior. <3
Besides the chaos involved with all of the follow ups, Liam saw his primary doctor every few weeks or even more frequent due to frequent colds and ear infections, we ended up in the ER roughly 4 times due to Liam having trouble breathing, or high fevers. When Liam was 11 months old he had Eustachian tubes placed, and was also diagnosed with asthma shortly after. Once the tubes were successfully placed and Liam was on the correct asthma medication, things actually slowed down for us, for a moment anyway....this month his cycle of follows ups start up again so we will be busy! I am looking very much forward to spending valentines day with the guy who owns my heart!
Overall, I am happy to say that for the most part we have been absolutely beyond blessed to spend the majority of our time ....like any other parents. We waited for all the milestones, they came and we would celebrate and Thank God. We dealt with teething, sleepless nights, separation anxiety and all of the other things parents experience, and through it all we couldn't be happier! We recently celebrated Liam's first birthday, it was a huge celebration and a great time- I thought the superhero theme was appropriate!
No comments:
Post a Comment